Monika's Sunshine DreamLift
A whirlwind adventure to The Magic Kingdom gave Monika the opportunity to discover what independence can mean
“Instead of being stuck with your parents all the time, it’s good to feel a little bit independent."
Monika lives with a disease people don’t always understand – Mucopolysaccharidosis Type 1 or MPS1.
“No one can understand unless you live with it,” says her mom, Mary. “It’s life-altering. The way I explain it is anything below her knee is a no, because she can’t reach down there. Monika is fifteen and she said, ‘Mom, I wish I could cook, but I can’t cook. The buttons to turn the stove on are at the back.’”
“I had never been away from my parents on a big trip like this,” says Monika. “Instead of being stuck with your parents all the time, it’s good to feel a little bit independent."
“The most wow experience was when we got into the gates at the Magic Kingdom and saw the Cinderella Castle – it was there and it was big.”